GTIHD

DID YOU KNOW...

A CARDIAC GENETIC TEST CAN BE PART OF THE SOLUTION!

Genetic Testing for Inherited Heart Disease

How Cardiac Genetic Tests are Helping People

What Leading Providers Are Saying About Cardiac Genetic Testing

What Is A Genetic Test For Inherited Heart Disease (GTIHD)?

A Genetic Test for Inherited Heart Disease is the process of taking a sample of a person’s DNA to look for changes that could cause inherited heart disease. Important changes in genes are called pathogenic mutations. The term “pathogenic” means disease-causing.

How Could A Cardiac Genetic Test Benefit Me?

Cardiac Genetic Testing can be used to:

  • Clarify the diagnosis in a person who has, or is suspected to have, inherited heart disease
  • Identify the cause of heart disease in a family
  • Predict which family members are at-risk to develop the family’s heart condition
  • Provide options for family planning, including preimplantation genetic diagnosis to try to avoid passing a disease-causing mutation to offspring

How And Where Is The Cardiac Genetic Test Administered?

This test is conducted by collecting your DNA sample. This is usually a simple cheek swab.  Your DNA can be collected at your Medical Providers office by any member of their staff.  It can also be collected in the comfort of your own home with authorization from a licensed medical provider, by yourself or a Personal Healthcare Advocate.

How Do I Know If I Qualify For A Cardiac Genetic Test?

A licensed medical provider will determine if you have a medical necessity to receive a Cardiac Genetic Test.  Your insurance company will then have to agree to cover your test.  Basic qualifications typically include being diagnosed with 2 separate medical issues, with one of them relating to your cardiac health in some way.  This could be related to things like blood pressure, high cholesterol and even circulatory issues.

How does this testing process work?

Option 1

  • You will complete the process at your medical providers office if they are currently offering Cardiac Genetic Testing and determine you have a medical necessity.
  • They will help you complete the paperwork and collect your DNA and send it to the lab.
  • Depending on the results, they will call or schedule a follow-up visit to review the results and discuss next steps if any.
 

Option 2

  • If your personal healthcare provider does not currently offer Cardiac Genetic Testing, your ACG Personal Healthcare Advocate can assist you in this process. 
  • They will first determine if you have basic qualifying issues that a provider could deem as Medical Necessity.
  • They will also check your Health Insurance Coverage to see if your provider will cover the test, so you have zero out of pocket expenses.
  • They will then schedule a time for you to meet with a Medical Professional who will conduct their own appointment with you via telephone or video to determine if you do have medical necessity.
  • If approved, you will be provided a DNA collection kit via mail or via your Personal Healthcare Advocate and your sample will be mailed off to the lab, along with your required paperwork.
  • Once your results are in, you will be contacted by the Telehealth Professional to discuss them.  A copy of your results can also be sent to your primary healthcare provider(s) upon request.
  • It could take 3-6 weeks for your results to be completed.

How Much Will The Cardiac Genetic Test Cost Me?

Cardiac Genetic Testing is considered preventive care. Medicare with Part B will typically cover the cost of the test if you meet the medical necessity requirements, so there would be no out of pocket costs for you in most cases.

What If My Medical Provider Won't Authorize My Test?

This test can arm your healthcare provider with very valuable information that can be used to better treat you based on your own personal genetic makeup.  Most medical professionals will likely authorize your test because of this, but also because it can help reduce their risk of liability. If your medical provider will not agree to authorize your test, it may simply be because they are not as educated as other providers in this arena or they believe you don’t have a medical necessity. If this is the case, your ACG Personal Healthcare Advocate can assist you in locating a Medical Provider who understands and believes in the benefits of genetic testing, and even schedule a telephone or video appointment with a Licensed Medical Provider who will meet with you and make that determination.

What About The DNA Testing Scams I've Heard About In The News?

Just like in any business or company, unfortunately, there are occasional bad apples in the bunch. Some dishonest people have decided to use this fairly new market as a cover to steal unsuspecting people’s identities. There are also other deceitful people whose intention is to defraud insurance companies by circumventing the rules and regulations.  

This is a very highly regulated industry, and you should only be dealing with licensed medical providers or HIPAA certified genetic screening advocates, well versed in the compliance guidelines set forth by CMS and the OIG. It is best to avoid telemarketers or door-to-door solicitors for any type of medical genetic testing. If anyone ever offers you money or any other gifts to sign forms to take a DNA test, please report them to the U.S. Department of Health and Human Services Office of the Inspector General by calling 1-800-447-8477.

Will My Results Affect My Health Insurance Or Employment?

Your results will NOT affect your health insurance or employment, thanks to a law passed in 2008. The Genetic Information Nondiscrimination Act (GINA) of 2008 protects Americans from discrimination based on their genetic information in both health insurance (Title I) and employment (Title II). For more information about the Genetic Information Nondiscrimination Act, go to http://www.ginahelp.org/GINAhelp.pdf.

This is a very highly regulated industry, and you should only be dealing with licensed medical providers or HIPAA certified genetic screening advocates well versed in the compliance guidelines set forth by CMS and the OIG. It is best to avoid telemarketers or door-to-door solicitors for any type of medical genetic testing. If anyone ever offers you money to sign forms to take a DNA test, please report them to the U.S. Department of Health and Human Services Office of the Inspector General by calling 1-800-447-8477.

I Want My Own Cardiac Genetic Test. How Do I Get One?

Contact the ACG Personal Healthcare Advocate, medical provider, or pharmacist who directed you to this information, and they will walk you through the process  to ensure you will receive your very own Cardiac Genetic Test if you are eligible.